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ERN-RND webinars in collaboration with ERN EURO-NMD and EAN
ERN-RND provides free educational webinars on rare neurological and neuromuscular diseases - in collaboration with the European Reference Network for Rare Neuromuscular Diseases (EURO-NMD) and the European Academy of Neurology (EAN). The goal is to share knowledge on rare neurological, movement and neuromuscular disorders via a series of webinars presented by expert members of both networks.
Topics: The webinars will treat topics related to the disease groups covered by the two networks and alternate between adult and paediatric contents. Various aspects from more general clinical features, examination, disease diagnosis, medical interventions and disease management to more specific ones as use of scales or imaging will be discussed.
Audience: clinical specialists (neurologists and paediatric neurologists), residents and other paramedical staff involved in the care of neurological patients.
Recorded webinars: The webinars are usually recorded and published on the "past webinars" webpage 2 weeks approximately after it took place. However, please consider that in the recorded webinar some features are missing and thus the live experience of these educational events is highly recommended.
Registration: In order to register for a specific webinar click on the webinar of your choice in the table below. The registration links will be active as soon as possible and at the latest 2 weeks before the webinar's date.
Next webinar organised by ERN-RND will be on:
10 September 2024: ‘Family Experiences with Huntington's Disease: Insights and Comparisons with other Neurological and Neuropsychiatric Disorders’ by Siri Kjølaas, Oslo University Hospital, Centre for rare disorders, Oslo,Norway
Date | Topic | Speaker | Institution | ERN | Focus |
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03 September 2024, 4 - 5 pm CEST | The ERN EURO-NMD Registry Hub Project | Nawel Lalout & Dagmar Wandrei | Radboud University Medical Center (NL), Medical Center – University of Freiburg (DE) | EURO-NMD | |
10 September 2024, 3 - 4 pm CEST | Family Experiences with Huntington's Disease: Insights and Comparisons with other Neurological and Neuropsychiatric Disorders | Siri Kjølaas | Oslo University Hospital, Centre for rare disorders, Oslo,Norway | ERN-RND | |
12 September 2024, 4 - 5 pm CEST | Therapies for Inherited Optic Neuropathies – an Update | Patrick Yu-Wai-Man | Cambridge Centre for Brain Repair, Department of Clinical Neurosciences, and MRC Mitochondrial Biology Unit, University of Cambridge, UK | EURO-NMD | |
17 September 2024, 3 - 4 pm CEST | The Role of Dopamine in the Pathophysiology of the Allan-Herndon-Dudley Syndrome/MCT8 Deficiency | Nina Wilpert | Charité, Berlin, Germany | ERN-RND | |
24 September 2024, 3 - 4 pm CEST | Clinical Neurophysiology in Dystonia | Anke Snijders | Radboud University Medical Center, Netherlands | ERN-RND | |
03 October 2024, 4 - 5 pm CEST | Presentation of the New Guidelines on ALS management | Philip Van Damme | UZ Leuven, Belgium | EURO-NMD | |
10 October 2024, 4 - 5 pm CEST | Update on ALS Approved Therapies | Andrea Calvo | AOU Torino, Italy | EURO-NMD | |
17 October 2024, 4 - 5 pm CEST | Management of Relationships and Sexuality in ALS Patients | Rachael Marsden | Oxford University Hospitals, UK | EURO-NMD | |
22 October 2024, 3 - 4 pm CEST | Neurogeriatric Aspects and Neurological Aspects in Palliative Care of MSA, PSP and Advanced PD | Martin Klietz | Hannover Medical School, Germany | ERN-RND | |
24 October 2024, 4 - 5 pm CEST | Novel Treatments in Hereditary Neuropathies | Peric Stojan | Department for Neuromuscular Disorders of the Neurology Clinic, University Clinical Center of Serbia | EURO-NMD | |
05 November 2024, 3 - 4 pm CET | Diagnostic Approach to Childhood-onset Chorea | Juan Darío Ortigoza-Escobar | Hospital Sant Joan de Déu, Barcelona, Spain | ERN-RND | |
14 November 2024, 4 - 5 pm CET | DBS in Dystonia - the network perspective | Juho Joutsa | Turku University Hospital | ERN-RND | |
19 November 2024, 3 - 4 pm CET | Autonomic Dysfunction in Movement Disorders | Pietro Guaraldi | Azienda USL di Bologna, IRCCS Institute of Neurological Sciences, Bologna, Italy | ERN-RND | |
26 November 2024, 3 - 5 4 pm CET | Differential Diagnosis aside from Neuroimaging for non-Leukodystrophy White Matter diseases | Nicole Wolf | Amsterdam Leukodystrophy Center, VUMC, Netherlands | ERN-RND |
Webinars from partner professional organisations
Webinars from other organisations
All past webinars of ERN-RND partner organisations (including patient organisations) can be found here.
Please note that ERN-RND is not responsible for the content provided via external links and has no control over them.